What is sickle cell disease? We touched on it briefly at the beginning, but what is it and what causes it?ĭr. The Robertsons, parents of children with sickle cell disease, are the founders and directors of the Maryland Sickle Cell Disease Association, an organization that was created to improve the lives of Marylanders with sickle cell disease. We are also quite fortunate to welcome Derek and Shante Robertson. Lance is an associate professor of Neurology and Pediatrics at the Johns Hopkins University School of Medicine. She's the co-director of the Institute's Neurology and Neurogenetics Clinic. Lance is the medical director of Kennedy Krieger's Sickle Cell Neurodevelopmental Clinic. Today I'm joined by one of my extraordinary colleagues at Kennedy Krieger, Dr. These conditions may severely impact children's functional independence, mental health, quality of life, and educational pursuits, and may increase their risk of future complications. The neurological and developmental implications that include strokes, seizures, and neurodevelopmental issues such as attention deficit, hyperactivity disorder, ADHD, specific learning disabilities, language issues, and executive dysfunctions. Today, our focus will be on an aspect of sickle cell disease that doesn't get as much attention as it deserves. These affected red blood cells do not do a good job of carrying oxygen to the body's organs like the lungs, liver, kidneys, muscles, and so forth, and that includes the brain. The genetic mutation directly affects the hemoglobin, the oxygen carrying molecule in our red blood cells, under the microscope, affected red blood cells take on a crescent or sickle shape, thus the name. Thus, it's an autosomal recessive disorder. People with sickle cell disease have inherited copies of genes from both parents. While the risk for sickle cell disease is greatest in people of African descent, about one in 365 black Americans have sickle cell disease, the disease crosses racial and ethnic boundaries and affects males and females in equal numbers. Sickle cell disease refers to a group of inherited disorders of red blood cells, that affects roughly 100,000 people in the United States alone. Brad Schlaggar, pediatric neurologist and president and CEO of Kennedy Krieger Institute. Bradley Schlaggar (BS): Welcome to Your Child's Brain, a podcast series produced by Kennedy Krieger Institute with assistance from WYPR. Supporting Students with Sickle Cell Disease in School ĭr. Sickle Cell Disease and Schooling Resources for Families Kennedy Krieger Institute Sickle Cell Neurodevelopmental Clinic Maryland Sickle Cell Disease Association Schlaggar is also joined by Derek Robertson and Shanta Robertson-the Robertson’s, parents of children with sickle cell disease, are the Founders and Directors of the Maryland Sickle Cell Disease Association, an organization that was created to improve the lives of Marylanders with sickle cell disease. Lance is an Associate Professor of Neurology and Pediatrics at the Johns Hopkins University School of Medicine. She is the Associate Director, of the Institute’s Neurology and Neurogenetics Clinic. Lance is the Medical Director, of Kennedy Krieger’s Sickle Cell Neurodevelopmental Clinic. Bradley Schlaggar, president and CEO of Kennedy Krieger Institute, is joined by Dr. These conditions may severely impact children’s functional independence, mental health, quality of life and educational pursuits, and may increase their risk of future complications.ĭr. The focus of this podcast is on an aspect of sickle cell disease that doesn’t get as much attention as it deserves-the neurological and developmental implications of the disease.
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